Tag Archives: questions

Not much difference

This will be a shorter post because I have been tending to Bill. I let this go a long time because of that, but I will be catching up soon I hope.

Let’s see, I left him at the memory ward, which was not necessary for Bill to be there, but I needed a break from the frenzied life we had been living. With all the doors slamming shut, and only small windows opening, I needed the break. Therefore, when I left him there, I went to NE, then Denver. I visited with old friends, but by the time I got home ten days later, I needed to rest up.

After a while Bill was spending more time at home than he was at the nursing home. We decided that he might as well come back home. Before he moved back in, I went to FL to see a dear friend. The days are getting shorter for all of us and I wanted to see her one more time.

I wanted to move to another town, so we moved into a place that I thought was like assisted living where I would get some help with Bill. We had two rooms, and the services were supposed to be room cleaning and laundry. We never got any room cleaning done, I had to do that and there was no help with Bill. What was the point of being there where they take all of your money and only give you three meals a day. There was very little nutrition in them and consisted of little taste either.

We decided that we would be better off going back to the town we came from and get our own apartment again. At least we will be eating decent meals and have someone coming in two or three days a week to clean, cook, and run errands for us. While we were there I became blind as to the continual decline in Bill’s judgement.

Someone told me that he had gone outside and wandered into the woods. Not thinking too much about that as he was in the room with me again. When night fell, I almost had a heart attack when Bill got undressed. His legs were covered with chigger bites on both legs from his feet to his thighs. I asked him how he got them clear up there and he said that he wasn’t sure, and I spent the next three hours scraping the bites open and dabbing each one with alcohol. He did remark that he learned a lesson that day.

When I look back at the few months that we spent there, I was aware of him getting a little worse and when one of the resident’s boss came in, Bill didn’t like him, he stood up at the table, and was telling me to get out of the way. I was sitting between the two of them. When I asked him why he couldn’t go around the table he held up his fist and said that he wanted to punch him in the face. This was the first sign of any violence I had seen in all of our years together. Never would I have guessed that he would threaten anyone. This guy was twice the size of Bill.

There were a few other things that he did that were not acceptable, but he wasn’t aware that he was doing anything wrong. We did have two rooms, but we had to go out into the hallway to get to the other room. Then he got lost and opened the wrong doors a few times which I was not aware of until later on. I was glad to go back to apartment living. I was having to be with him all the time and with him in whichever room he was in.

Back now to our own apartment.

Difficult Apology

There’s a program here that gives a prompt. That is to help writers get their thoughts running again. Now, you may use these single words for that purpose,  just for practice, or you may do them  for fun.

I wrote a daily prompt a while ago that was on the word apology. I began by saying that an apology that consists of a short statement such as “Oh, sorry ’bout that” is an unacceptable apology. When an offense is committed against a person it becomes a personal offense. A personal offense deserves a personal apology. Sometimes an offender doesn’t realize that they have offended or hurt someone.

After 20 years, my personal offense against my family has become a painful realization of just how deeply that one act hurt them. I never dreamed that my actions would hurt anyone but myself. Seeing that it does, apologies are long over due. After I wrote and posted my apologies online, thoughts of my own attempt ran through my mind again. Slow motion flashbacks kept me awake night after night. This was a very sensitive subject to me and to my family. Once believing that my children, my stepson(s), our granddaughter, and my parents would not suffer any pangs from that act, but now I knew that it did. I removed the post. Unfortunately, I hastily destroyed it and wish I hadn’t.

A comment on one of my posts was a cry for help so, I had to write this post. I have to do this for my family because it has taken me more than 20 years to realize the unimaginable agony I caused the ones closest to me. Unexpectedly, I found myself needing to apologize to a number of people. That one comment made me imagine what happens to each family member when someone commits suicide. Jess, there was a day you revealed to me you remember the day of musical chairs. Then you asked where that was. I had to tell you that it was at the hospital for people who needed help.

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This act would have hurt you in a way different from all the others. If you had known that when it happened, you would have realized by the time you were in grade school that your grandma would have been there in your life to watch you grow up. Had I succeeded, you would have realized this was my fault that I wasn’t there.

Your years of growing up were some of the happiest years of grandma and grandpa’s lives. The visits, the overnights, the talks, and the vacations we took together, we always tried to do things that your parents didn’t do with you. I would have missed all those things.

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When someone commits suicide they don’t really want to die, they want to stop the pain. I remember wanting to die way back when I was a child, but I didn’t know why or how to do it.

He never saw any of the promises the recruiters made. He was in Afghanistan but a couple of months and they sent him home. He was in Bethesda Hospital for a while and as soon as he got out, he waited for a train on the deck and threw himself onto the tracks in front of the train.

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To everyone that felt the sting of my actions, I truly believed at that time, I was only hurting myself. I truly believed that it would affect no one but me. Anyone who thinks that way needs help right now. I knew I was in trouble and headed for more, but I didn’t know how to stop it. Owing everyone in the family an apology, I am going to try to do that now.

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My husband and I had a long talk along with my apology to him. This was the most difficult person I have ever had to apology to. When I realized how deeply my husband loved me, how much he depended on me to care for the family and all that had to be carried out. If he had me no longer, and had to take care of all the affairs, and how much this would have devastated Bill. I could see it then. He would not have been able to bear this happening to him. He had already lost so much in his life; this would have deadened his emotions to the point of physical and emotional paralysis.

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JR, although you are grown now, you were young at that time. If I am correct, I believe you were 13. Words will never be enough and there are not enough words to apologize to you. I know that this did hurt you in ways I don’t know how, still to this day. You saw what was happening to me and I sincerely apologize for the unhappiness and uncertainty I caused in your life at that time. It was more difficult for you than any of the kids. You were at the age that you needed a mother figure in your life, and I let you down. In the younger years of yours and Jason’s lives we did have many good memories, but I am aware of the bad ones too. There were too many and I feel badly about those days too. Sometimes I still cry about those days, and I cry even more over the selfish act of suicide. We’ve never talked about it, so I don’t know exactly how you felt, how much you knew, or what damage I did to you.

Jason is not here for me to apologize to. It’s too bad that he was hurting so badly that he needed to make the pain go away the only way he knew how. (His girls were loved so much by him and they loved him too. He might have been able to put the brakes on and she would not be so wild.) I know that this hurt him at that time in ways I don’t know either. My attempt affected him somehow but I won’t know until the resurrection. He was a difficult child to get to know what he was thinking. It may not seem like it, but at times I felt as if he were my own too. He tried to reach out for help, but I was not able to cope with him at that time. Many times you saw me help him when he needed it no matter what. I know that your father didn’t know what to do to help either of you. He’s a good man and loves both of you. I do look forward to seeing him again. We both did the best we could at that time.

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Now I turn to my own 2 daughters. Tammie, I know you were and still are very upset with me and there isn’t anything I can do about that. You only stayed with us a couple of months. When your father changed the lock on the door without your knowledge and you didn’t want to come back to us, I just figured that you didn’t love me, so I let you go. I didn’t order the police to put you on a plane back to us.

I don’t know how my actions affected you, if it did at all. You are further away from me than words. All I can do is apologize. I truly am sorry for my act of selfishness.

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Lauralee, You were around when this happened and I’m so sorry that it hurt you; some day I would like to sit down and talk about that. I hate now what I did years ago. Our relationship has always been rocky at best. I know we laughed about that before, but it isn’t really funny. I am sorry that I don’t recognize how this affected you since we are not very close. I would like to talk to you about it someday soon. My deep apologies for not being there. Thank you for the amount of time that you let Jess visit us and spend so much time with us while she was growing up. I feel bad that we didn’t have time to have lunch when I was in Denver. I’m sure Jess told you I got pretty sick in Laramie. I won’t be back to CO again. The altitude I can no longer tolerate. The doctor said that once you leave, you can’t go back if you have lung issues.

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This is for my parents who were thankfully busy with their own lives. My dad was sick and my mother was trying to take care of him and work at the same time. Now they are both gone, so I cannot apologize to either.

Underestimate

Why would you want to do that?

I underestimated myself all the time until I took a good look at the word and then a good look at myself. Using the thesaurus, I found the first word listed was “under value”

I didn’t know myself at all. Here I was plugging along and just going through the motions of life. I never stopped to think that I had any value at all. Until I got off  “my little pity pot” and took an honest look at myself.

  1. Yes, I had faults, so does every one
  2. I just had no energy and I didn’t care if I made a difference in anybody else’s life
  3. I’ve never felt I was worth anything at all. OK I told myself.. 

It’s time to get off the pity pot and get some positive juices going. The reasons above are now things of the past. First of all, I am a person who is a giving person, I love people and it makes me happy to give to others. I know that I make them happy because they always tell me how glad they are when I stopped in and visit them, or bring them something to eat when they’re sick.

Then there are all those years that I contributed to society by working, paying taxes Then there is the fact that I have talent in some things. I love photography, and I have a knack for writing. It doesn’t matter, stories, diaries, resumes, etc. I found that when I looked at life through the eyes of an objective person, I have a lot of worth.

So, let’s all get off of our “little pity pots” and take a good look at ourselves. I will never underestimate myself again and I bet you won’t either.

The Flying Fork

 

When my step dad came into the picture, I was about 11 years old. There were five of us kids, four girls and one boy. My older sister was eight years older than I was and she had just left home the year before when she turned 18. She joined the W.A.C.S to get out and away from home.

Jack asked us if he could marry our mom which I was very impressed with and the four of us said yes even though my brother didn’t fall in love with him like the rest of us did. He came from money, but drank it all in his early years. He was broke and just out of jail when he met my mom. They met at an AA meeting and he fell in love with her.

We weren’t sure what to call him after they married 2 months later. Our new stepfather thought that it would be appropriate to call him daddy-Jack since our biological father was still alive and had visiting rights. It wasn’t long before I dropped the Jack and just called him daddy. Not long after that my sisters did the same, but my brother just always called him Jack. Ronny only approved of them marrying after he observed how well he treated mom and how happy she was now.

Ronny was older and remembers the fights, the screaming, the pushing and shoving that went on between my father and mother. I was only six when they separated and remember some fighting, but he remembered a lot more. The house was now quiet with the only fighting that went on was between us kids which were quite normal.

Since my daddy had money when he was a kid, he was raised with impeccable manners. We on the other hand, were very inept and crude in ours. His manners followed Emily Post, and ours was sort of fashioned after the three stooges. He was not too impressed the way we reached in front of everyone to get what we wanted. He just watched us for a while and didn’t say anything.

One day came along that he could no longer stand it. He could no longer bite his tongue even though he wanted to give us time to adjust.to him being a part of our family. He talked about what was polite and not polite and started with the things that bothered him the most. I guess that chewing with our mouth open and talking with food in our mouths was the first thing he tackled. The correction came by way of verbal reminders. It didn’t take long to get these bad habits almost all under control when I got a big surprise one day.

I reached for the pot roast which was sitting in front of my sister who was sitting next to me at the dinner table. When I reached for the dish, I got stabbed with a fork. Well, that was a strange thing to do and it shocked me, and don’t even mention the pain on the back of my hand. I pulled my hand back and glared at daddy-Jack. I couldn’t help but wonder why he just did that. The twins started to laugh.

I just glared at him. He finally asked me if I knew why he did that. I said “NO” with tears in my eyes. He said that Emily Post, the leading authority on manners, says that reaching in front of someone is very bad manners. I asked “How else can I get it without picking the dish up myself?” He then said these foreign words to me that I will never forget. He said, “You ask someone to pass the ‘whatever it is you want'” “From now on if anybody forgets to do that, the fork will be on the move again.”

The only thing I could think to say as I rubbed the back of my hand, with tears still in my eyes was,” Okay Jack, next time I will ask someone to pass me the ‘whatever.'” I never got stuck in the back of my hand again, and soon after started calling him daddy once again.

He was a wonderful father to us and thought of us as his own children. We were his family and we came first. He always told his secretary that if one of his family members’ calls and wants to talk to him he told her to always put the call through to him even if he was in a meeting. I remember many times coming home from school and if he was there, we’d always go into his study and talk. I couldn’t talk to my mother, but I could always talk to my daddy and tell him anything because he understood, he didn’t judge me, and he just listened.

I was forever worrying that the man I thought of as my father would die not knowing how much I really loved him. On his dying bed, he called me to come close he wanted to talk to me. When I leaned over, he begged me not to ever forget him. I started to cry and told him I was always afraid he would die without knowing how much I loved him. We both cried and laughed at the same time as I told him that of course I wouldn’t forget him as long as I was alive. That was the last time I saw him, he died the next day before I could get back to the hospital.

I now think fondly of the fork that stabbed the back of my hand. I cried for weeks when daddy died and the flying fork will forever remain a memory.

 

Dementia and/or Alzheimer’s?

Have you ever wondered if there is a difference between Alzheimer’s and Dementia? Does it even matter? Why should you care?

A few specialists say there are no distinctions and they utilize both Alzheimer’s and Dementia equally. Some specialist’s find there are a couple of contrasts yet say they all end up in the phase of Alzheimer’s so it doesn’t make a difference what it is called. In the two articles in Lifescript.com, and ALZ.org there are varying opinions.

Alzheimer’s sickness is the most widely recognized reason for extreme mental deterioration (dementia) in the elderly. It has been evaluated that 30% to half of individuals more than 85 years of age experience the ill effects of this condition.

Alzheimer’s starts with unobtrusive indications, for example, loss of memory, for names and late occasions. It advances from making the same inquiries again and again to trouble learning new facts. In this stage, they forget to pay the bills, and lose the worth of a dollar by being scammed. Further stages are a few eccentric behaviors some depression in varying degrees, they lose the concept of time; there is no recognition of that fact.  These steps are not always in this order and usually take years to just go through these stages mentioned. Through the span of the illness, the individual step by step loses the capacity to complete the exercises of regular daily existence. They have an inability to recognize their friends and even their seldom seen children are attributes of modestly extreme Alzheimer’s. In time, for all intents and purposes every single mental capacity comes up short.

See more at: http://www.lifescript.com/wellbeing/non-alzheimers_dementia . See more at: http://www.lifescript.com/wellbeing/a-z/elective treatments  http://www.lifescript.com/wellbeing/a-z/elective treatments. This data is from lifescript.com

Dementia-Symptoms: The very first thing Difficulty recollecting late discussions, names or occasions are regularly an early clinical indication; unresponsiveness and gloom are likewise frequently early manifestations. Later indications incorporate inhibited correspondence, misguided thinking, bewilderment, disarray, conduct changes and trouble talking, swallowing and walking.

Modified rules for diagnosing Alzheimer’s were distributed in 2011 prescribing that Alzheimer’s be viewed as a gradually dynamic cerebrum sickness that starts a long time before indications rise.

Mind changes: Hallmark variations from the norm are stores of the protein piece beta-amyloid (plaques) and bent strands of the protein tau (tangles) and additionally confirmation of nerve cell harm and passing in the cerebrum.

Take in more about Alzheimer’s http://www.alz.org/alzheimers_disease_what_is_alzheimers.asp  Alzheimer’s infection. Above is the utilization of the two utilized conversely? This data is taken from Alz.org

I watched my mother for 16 years go slowly downhill with Alzheimer’s. I took care of her, seeing to all of her needs. She did not live with us, but I watched her closely until the very end. Now, I watch my husband quickly slip from dementia into Alzheimer’s. So they both do end up in the same place but the ride is very different.

Alzheimer’s may seem dramatic at times to those who are the caretakers, it can be and I’ve dealt with that too. Each time there was a turn in my mom, it was a sad thing. She may have lost her friends names. It was embarrassing for her and she began to stay home more. I moved her from Denver to Carthage, MO and I placed her in a nice assisted living facility only a few miles from me so I could visit her daily and spend a few hours with her each day.

In dementia the distinctions are much more difficult, they are significantly heart wrenching. Dementia has a face that flies up repeatedly; it’s ugly, destructive and rears its head with more destruction than the last time. This malady may ransack your friends and family who are unfortunate victims of this vicious and destructive dementia. It steals their fundamental abilities one skill at a time. Understanding of words and communication disappear silently. Ability to follow instructions becomes impossible. They don’t recognize a common object even if they look at them and hold them in their hands there is no recognition. Dementia steals their lives and in the end, Alzheimer’s takes it.

The saddest day I had with my mother was the point at which she inquired as to whether she would forget me as well. I couldn’t remain there and mislead her. With tears in my eyes, I disclosed to her that she will, however I will feel it more than her since she won’t recollect me yet I’ll recall her.

The saddest typical day for a man with dementia, I can just figure. Each time Bill slips, it’s been more devastating than the last. From all out wood appearances it seems he struggles with all of life in general. He lives in a world that is upside down and this continues to be anything but comfortable; additionally this experience is something that he can’t control. Much the same as the specialists over, a few people accept there are no contrasts between the two conditions. If you would like to know the answer to that question, continue reading this series of “The face of dementia.” Whatever they lose, the caretaker will need to figure out how to manage it. Each time the appalling creature demonstrates its face; you have been innovative and figure out how to coexist with it.

So decide for yourself whether Dementia and Alzheimer’s words are interchangeable. Listen to my observations during my mother’s Alzheimer’s and my husband’s Dementia.

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I never put much stock in the comments that people make. Oh wait, I need to say that if people don’t make sincere, or personal comments on something you have written, then there is not a grain of truth, and their comments are insincere.

What’s wrong with stopping and really looking at the photo, article, the way someone is dressed, or whatever you are ready to make a comment? If you do that, than you won’t give comments like, “Good job” or a canned comment such as ones found on WordPress Blogs which this one is and say; “John and Susie think your story was awesome. Now check out their sites and see if you like them just as much.” Sorry folks, I trash most of them. If you are going to compliment someone on something you like, write something. You are supposed to be a writer …. write something.

How about something such as. “Wow, that article stunk. I didn’t like the part about you telling someone to write what they liked and didn’t like.”  Or something like “I love the post on “Fork.” I found that funny and sad at the same time. My step dad was a good one too.” Now, those are comments that mean something to a writer, a photographer, or any other artist. What is even better would be something like, “Loved the Face of Dementia, my mom had Alzheimer’s and it is sad to watch them go downhill. I give a like and a thumbs up to that difficult subject. More people need to know the stages so they know what they are in for if a loved one has dementia.”

Now, the second paragraph there is not a grain of truth in that comment. I find it offensive and I would rather they not comment at all.

If you are going to give a comment whether it be a sincere positive one, or a sincere not so good comment, at least make it sincere. Then the one that reads that comment can either feel good and know what their audience thinks, or if not enjoyed and told why, then the one the comment is meant for; knows what they need to put a more positive spin on. At least then, the comment will have a grain of truth if not a square foot of grains.

Oh, the heck with it. Only write sincere good ones. Who wants to hear sincere bad comments anyway? Seriously, give your sincere comments on something positive or something that touched your heart, or you agree with. That is encouraging to all writers no matter how long or how famous they are. I only hope one thing. I hope I have never written one insincere comment to anyone for anything.

Which one is Truly Deprived?

Deprive

As many of you know, I have been struggling with my husband’s dementia. We’ve had windows open and doors shut, we’ve tried being playful, and yet I feel as if I am empty and can’t give any more.

Now I have to put him into a nursing home and the sadness is overwhelming for me. I’ve talked to him, and he’s been quiet and tearful. I have been also. Neither of us are able to say what needs to be said. I need a break and he is no longer able to stay by himself.

When I put my mom into a nursing home it was very different. She obviously needed more nursing care than the assisted living community was able to give her, Of course there is some guilt with that, but not nearly the struggle there is with a husband who has been a constant companion for many years. Now, you know that he will still be alive, but won’t be living with you any longer.

Anyone who is, or sees the early signs of any type of dementia can know what to expect. Some people go through them very slowly, and some go quickly. I just am wondering who will feel more deprived. Bill will know that I am not there and he can’t come home to sleep, and I can’t be there all the time. There isn’t really anywhere we can visit privately unless I take him out of the memory unit. He will miss me terribly. He’ll want to hold me, but I won’t be there, he’ll want to tell me he loves me. He’ll want to tell me he wants to come home. He will have to share a room with a stranger. His balance is terrible and he will be falling down. He won’t like sharing a room with any stranger.

I will be home feeling alone and not knowing what to do. I can go visit Bill, but most of the time I will go home alone. Will I be afraid at night? I won’t have anyone there to share something beautiful with. I will miss his arms around me and his shoulder to cry on.

Who will be deprived the most? We will equally be deprived. We are still looking for those golden years and they are “just around the corner.”