Category Archives: changes

Bill Tells All He Can

 

Bill talks as well as can be expected

 

In September 2017

I’ve asked Bill what his world is like because it could help other people who have loved ones with dementia. It may also help others who already have it what they could expect for themselves, and their loved ones.

Now, some may not go through the same steps in the same order, some may have none of the views of their unfortunate condition, but this may help everyone with dementia. His first answer was that it is none of their business; let them find out for themselves.

 

October 2017

Bill had been declining on a regular basis. The time had come that he wanted to tell what was going on in his own mind. By then, he could mostly talk so that it was understandable but his sentences were still broken. He was always soft-spoken and kind. Never would he get angry and push people away, never would he get angry or annoyed with me.

Since he has always had trouble finding the right words to describe how he is feeling, I thought that if I helped him find some words it might help him, he would be able to express himself.  Therefore, I asked him if the world looked normal to him

He said that it didn’t but he just didn’t know what he is supposed to do anymore. Bill also replied that he didn’t feel as if the world was normal, but I don’t know how to… no words were able to get out after those words.  I then asked him if the world seemed upside down to him. He thought for a few minutes, looked at the floor, then at me and with tears in his eyes, his answer was yes, it kind of did seem upside down.  Once again, I asked him with tears in my eyes if the world made any sense to him at all. It took him a few minutes to answer that question too. …  His answer was that nothing made any sense to him anymore.

Those were his answers. These remarks were made sporadically… I don’t know what I am supposed to do. I asked if he wanted to go for a walk. He would always want to know where we going to walk to. I told him that it was just to the office and back. He would be okay. Today I asked Bill what his world feels like to him. At first, he said that it was none of their business. Then I asked him if his world seemed to be upside down and if it makes him feel lost. He finally answered that it was upside down and he didn’t know what he is supposed to do. I told him that I only could guess how that felt, but I thought that he was brave being in that kind of world and functioning anyway.

Continue reading Bill Tells All He Can

Feelings

This is another entry about the feelings my husband hides within his heart and memory. He is weighed down with dementia and at times, he believes he is carrying this burden by himself.

He’s not alone, for this is a two-person journey from beginning to end. What I’ve seen in Bill is the sadness of losing each skill, each thought, each piece of him to oblivion. I’m not morose, or a negative person, but this is a sad condition of the mind. Dementia is a condition of the mind that two people have to deal with. Each must adjust and help one another cope with the stages that must take place.

Continue reading Feelings

Not much difference

This will be a shorter post because I have been tending to Bill. I let this go a long time because of that, but I will be catching up soon I hope.

Let’s see, I left him at the memory ward, which was not necessary for Bill to be there, but I needed a break from the frenzied life we had been living. With all the doors slamming shut, and only small windows opening, I needed the break. Therefore, when I left him there, I went to NE, then Denver. I visited with old friends, but by the time I got home ten days later, I needed to rest up. Continue reading Not much difference

Lurch

Ever played dodgeball? Well, we played it a lot at lunchtime break in elementary school. That was grades one through six for you youngsters. Now mind you, I was a shy child and always got picked last for any team but I did play and I was good at most sports. Still, my school years were not my best years.

It was me that was usually chosen first in dodgeball. Believe me; it was worse than being picked last on team sports. Chosen first in this game meant being the first one everybody threw the ball at. Oh come on, this meant low man on the totem pole and the boys threw hard enough, but the girls matched and sometimes beat the velocity of the ball.

Here I am in my hand me down dress that I hadn’t grown into yet, and bubble gum still stuck in my hair from the night before. I closed my eyes and just knew that this was going to hurt. The first throw made me lurch forward and I fell in the dirt. The second throw hit me before I got up and somehow landed under my dress. Of course, that made my dress fly up and show my panties which made everyone laugh. Therefore, with a heart full of indignity I took my rightful place in the circle.

I got to throw the ball first and I missed. Even though I was able to regain my dignity, I caught the ball again. When I did anything, I really put all my energy into it and play my best. I guess that can be expected growing up in a family of tomboys, and being raised in a neighborhood of all boys. I had to play tough. The trouble was that while I was a tomboy and could climb trees with the best of them, I still threw like a girl. My turn to throw again landed smack dab in the middle of a girl’s stomach. Noticing that she didn’t even move when I threw the ball, I knew that I was being set up.

Back in the circle again, I lurched to one side and then the other trying not to get hit. The next thing I knew, I was eating dirt again. Of course, that is when the bell rang and playtime was over. I stood up, brushed the dirt off me and once again tried to regain my composure. Once inside I breathed a sigh of relief. Another day of indignity put behind me. I shuddered to think of what tomorrow might bring.

Of course, I wasn’t raised in a good environment growing up. The five of us would have been removed by social services if raised in today’s society. I was picked on a lot by the boys in the neighborhood and always felt as if my heart lurched backward every time I would get a cruel comment. I’d head home each time but stopped crying as I neared house. Unfortunately, I would end up crying before bedtime got there, and even more when I went to bed.

Occasionally I remember those school days. I don’t look at them as being too terrible. I survived into adulthood. When I got into my 30’s, I got five years of therapy. Believe me, once I understood that when a person becomes an adult, they do so by letting go of the past and taking responsibility for the adult you want to be. If we don’t do that, then our childhood continues to rule our lives and we never mature.

 

 

Shimmer

There was a time I was shy and it was in the childhood years. The feelings within me were too much for me to bear alone, but alone I did bear them. I was only five or six years old. It’s truly strange that they were so severe that I wanted to go to sleep and not wake up. I wanted to die but I didn’t know how to do that. If I could just disappear, I would have been happy. I never could do that either. Continue reading Shimmer

Casual; has it gone too far?

 

When I was in school, mind you I’m giving away my age, we had to wear dresses or skirts, and boys had to wear dress pants and dress shirts. There were no exceptions, nor were there any excuses. It was automatic that you put them on and it was expected with no variations to that rule. It was the school dress code and girls dresses and skirts could not be above the knee. It had to be just below the knee or longer or you were sent home no questions asked.

As a matter of fact, I was a senior in high school before the code changed. The schools became a little less strict on the matter. They dared to let girls wear pant suits and this was allowed for the girls. Boys dress didn’t change yet. Girls pant suits had to match top and bottom with a blouse if it didn’t cover the below the neckline. The style in that day was that the neckline was covered. I felt absolutely scandalous wearing pants to school. It was utterly unheard of.

The next style to appear on the scene were mini skirts. Oh my goodness! That was allowed in school but it could not be any shorter than 3 inches above the knee. Already thinking that was showing too much, never would anyone be catching me wearing one of those kinds of dresses. That’s what I thought. Bob, my boyfriend at the time want me to wear one, so he gave it to me for a gift, all wrapped up in pretty paper. I already thought that the school dress code had gone too far. In fact, when I was wearing a pantsuit I had felt as if I should have a dress on. Bob knew my opinion, but wanted me to wear one anyway.

Casual was the word for these mini skirts dresses and skirts. I wore one out on a date with Bob. He loved it and I hated it. I felt positively naked in it. I kept trying to pull it down over my knees, but every time I tried to pull it over my knees, he would push my hand away. I hated this dress and I hated Bob for making me wear it. Our heads clashed once the two piece bathing suit came out. I gave in and bought myself a two piece bathing suit, but I found my own style of two piece. I bought a two piece that covered the midriff and the bottom was the length of our gym shorts had been, and our behinds did not hang out.

Anything goes today and nothing is casual really, that is not according to the words above. So be careful ladies.

Difficult Apology

There’s a program here that gives a prompt. That is to help writers get their thoughts running again. Now, you may use these single words for that purpose,  just for practice, or you may do them for fun.

I wrote a daily prompt a while ago that was on the word apology. I began by saying that an apology that consists of a short statement such as “Oh, sorry ’bout that” is an unacceptable apology. When an offense is committed against a person it becomes a personal offense. A personal offense deserves a personal apology. Sometimes an offender doesn’t realize that they have offended or hurt someone. Continue reading Difficult Apology

Underestimate

Why would you want to do that?

I underestimated myself all the time until I took a good look at the word and then a good look at myself. Using the thesaurus, I found the first word listed was “under value”

I didn’t know myself at all. Here I was plugging along and just going through the motions of life. I never stopped to think that I had any value at all. Until I got off  “my little pity pot” and took an honest look at myself.

  1. Yes, I had faults, so does every one
  2. I just had no energy and I didn’t care if I made a difference in anybody else’s life
  3. I’ve never felt I was worth anything at all. OK I told myself.. 

It’s time to get off the pity pot and get some positive juices going. The reasons above are now things of the past. First of all, I am a person who is a giving person, I love people and it makes me happy to give to others. I know that I make them happy because they always tell me how glad they are when I stopped in and visit them, or bring them something to eat when they’re sick.

Then there are all those years that I contributed to society by working, paying taxes Then there is the fact that I have talent in some things. I love photography, and I have a knack for writing. It doesn’t matter, stories, diaries, resumes, etc. I found that when I looked at life through the eyes of an objective person, I have a lot of worth.

So, let’s all get off of our “little pity pots” and take a good look at ourselves. I will never underestimate myself again and I bet you won’t either.

End of phase

End of retirement phase

 

Along with dementia comes a loss of many things in our lives. When one party is sick, and the other has dementia, the medial bills stack up fast on the credit cards. With medical and bills piled up, something has to give.

Therefore, another phase of our lives ends after retirement. We had to sell our beautiful four-bedroom home on five acres. One reason was the medical bills that stacked up leading us to bankruptcy which put an end to our good credit we had at the time. Alzheimer’s had resided with my mother for 15 years by now. Dementia had been diagnosed in my husband Bill’s life. No more trips, no more dropping everything and going somewhere. Yes, the carefree phase of our lives had slammed the door quickly.

We had entered a new phase. It was one of high medical debt, and maxed out credit cards. There was no end in sight to this new phase either, especially after I fell and broke my shoulder. Necessity left me with five surgeries in the first year alone. My mother had to be moved to a nursing center and I still needed to be with my mom often. My mom needed me in these last of her days, even if she didn’t recognize me. I had to be sure that she still was taken care of properly. I had to take her laundry home and wash it because her clothes disappeared when they went to the laundry there. Dementia in the first stage was waiting at home for me.

It does sound like I’m whining, but I’m not. My mom died a few years ago. My husband’s dementia is in the second stages, but I don’t mind. Our bills are under control and we now live in a one-bedroom apartment. I wouldn’t say that life is good, but for me it is. I still have my husband home with me. I rejoice each day that we are able to communicate and be understood by each other. That is a joy in my life.

In the early years of our marriage, he had to care for me. He did it so lovingly and never complained. He was there for each medical emergency, and each surgery. Now it is my privilege to care for him. I hope that I can do that with the same love and gentleness that he has done for me all these years. So now begins the final phase of our lives and I will still thank our heavenly father for the Kingdom we pray for, the Kingdom that will rule over the entire earth, (Rev 21:4) and tells of no more death or tears.

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The Flying Fork

 

When my stepdad came into the picture, I was about 11 years old. There were five of us kids, four girls, and one boy. My older sister was eight years older than I was and she had just left home the year before when she turned 18. She joined the W.A.C.S to get out and away from home.

Jack asked us if he could marry our mom which I was very impressed with and the four of us said yes even though my brother didn’t fall in love with him like the rest of us did. He came from money but drank it all in his early years. He was broke and just out of jail when he met my mom. They met at an AA meeting and he fell in love with her. Continue reading The Flying Fork